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Contractures in Ehlers-Danlos Syndrome
Vascular Ehlers Danlos is the gift that just keeps on giving. In late childhood I was diagnosed with juvenile arthritis. In adulthood I got a lot of the joint issues managed until I was around 45...
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Neuropathies in Ehlers Danlos Syndrome
Breakthrough by Donna Williams Connective tissue can be found throughout the body. Muscles, ligaments, tendons, cartilage, joints, skin, vascular walls, the walls of organs and some of the brain are...
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Connective tissue, Ehlers Danlos Syndrome and the brain
Connective tissue in the brain is essential to learning and how we store information. What then of those with connective tissue disorders such as Ehlers-Danlos Syndrome? Whilst EDS is presently...
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Ehlers Danlos Syndrome, collagen and estrogen
Warrior by Donna Williams http://www.donnawilliams.net/Gallery/Available/index.html The definition of a degenerative disorder is when there is an active process contributing to measurable decline in...
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Daytime Apnea
I was diagnosed with Mixed (mostly central) apnea in March 2012. I had complained about waking and finding I was not breathing in 2009. I explained that I wasn’t gasping for air (as happens in...
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Peripheral Polyneuropathy: a case of the ‘perfect storm’?
My journey with peripheral polyneuropathy has probably lasted my lifetime. It made itself known along the way but by 2009 its whisper was clearly audible, by 2011 it was shouting, by 2012 it was...
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ARTISM blog – art work of the month – Dec 2013 “Starman” by Donna Williams
This month’s artwork is titled ‘Starman’. It is 38 cm x 58 cm, acrylic on wood. What comes to mind is the Bowie lyric “There’s a Star Man Waiting In the Sky’. This painting is a movement from my flying...
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IgA deficiency and false negatives on Coeliac testing
I was wheat/rye free in 1990, then returned to wheat on and off until 2001, then was dx’d as gluten intolerant due to undigested gluten related proteins in my urine, then in 2011 had an IgA coeliac...
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Idiopathic Inflammatory Peripheral Neuropathy & Food Intolerances
My journey with peripheral polyneuropathy has probably lasted my lifetime. It made itself known along the way but by 2009 its whisper was clearly audible, by 2011 it was shouting, by 2012 it was...
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Lets Stop Calling it ‘the autism': Autism and Trauma – what’s the connection?
Recent studies in reputable medical journals have linked Autism to seemingly farfetched things like being born to mothers with pre eclampsia, being born prematurely, being born to older fathers, being...
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Life with a Central Hypoventilation Syndrome
WHAT DOES IT MEAN? Central hypoventilation means your brain keeps forgetting to keep you breathing. See, we have this thing called a ‘respiratory drive’ and this makes us keep breathing. This is why...
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Autism, Ehlers Danlos, Dysautonomia and Respiratory Failure – what do we know?
I was diagnosed with Autism in 1965 (aged 2). I grew up with autonomic issues, none of them formally diagnosed until they were pushed over the line following two general anaesthetics and chemo in...
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Those 6 monthly oncology appointments
I see the oncologist twice a year. My next appointment is coming up. The point of these 6 monthly oncology visits is to find breast cancer metastases early… However, my view is that metastases are...
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Babysitting the bowel in Vascular Ehlers Danlos Syndrome IV
My father died from bowel cancer in his late 50s. I survived breast cancer in my late 40s and of course this means I’m a reasonable candidate sooner or later for possible bowel cancer to give me a run...
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Ehlers Danlos Syndrome and Multiple Sclerosis – a look at the literature
Ehlers–Danlos syndrome (EDS) is an inherited connective tissue disorder. Multiple sclerosis (MS) is a demyelinating disease in which the insulating covers of nerve cells in the brain and spinal cord...
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Connective tissue, Ehlers Danlos Syndrome and the brain
Connective tissue in the brain is essential to learning and how we store information. What then of those with connective tissue disorders such as Ehlers-Danlos Syndrome? Whilst EDS is presently...
View ArticleClik here to view.
Ehlers Danlos Syndrome, collagen and estrogen
Warrior by Donna Williams http://www.donnawilliams.net/Gallery/Available/index.html The definition of a degenerative disorder is when there is an active process contributing to measurable decline in...
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